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Treatment of Pemphigus and Pemphigoid Diseases - Priority Setting Partnership Survey now live

We are co-ordinating a James Lind Alliance Priority Setting Partnership (PSP) on Treatment of Pemphigus and Pemphigoid Diseases, funded by Nottingham Hospitals Charity.  This is a UK wide initiative to gather research suggestions from the 'PEM' community - pateints and clinicians. The first survey is now LIVE.

We would like to hear from patients and carers who have been affected by pemphigus or pemphigoid disease and from the healthcare professionals who treat them. This priority setting partnership will make sure that future research into the treatment of pemphigus and pemphigoid is focused on the most important questions. We would like to hear the questions you have about the treatments for:

  • bullous pemphigoid
  • pemphigus vulgaris
  • mucous membrane pemphigoid

For more information about the PSP and to access the survey, please follow this link:



Posted on Wednesday 30th October 2019

UK Dermatology Clinical Trials Network

Centre of Evidence Based Dermatology
The University of Nottingham King's Meadow Campus, Rm A103
Lenton Lane, Nottingham