A Priority Setting Partnership brings together patients, carers and health professionals with the aim of identifying priorities for research on specific health problems. In the UK, Priority Setting Partnerships are facilitated by the James Lind Alliance (a non-profit making initiative)We have been involved in several partnerships of this kind on different skin conditions.
Skin Cancer Surgery PSP
This is a joint UK DCTN/ BSDS funded project which aims to find the top most important research questions in skin cancer surgery.
Auto-immune blistering diseases - Bullous pemphigoid, pemphigus vulgaris and mucous membrane pemphigoid.
In collaboration with the University of Nottingham and PEM Friends.
What happened next?
De Montfort University Leicester led this PSP on the relatively common condition of hyperhidrosis. This was a UK DCTN funded project.
See news article here from De Montfort University
The Psoriasis Association and University of Manchester announced the outcome of the PSP in November 2018 and are publicising the results widely in 2019
Publication here: https://onlinelibrary.wiley.com/doi/10.1111/bjd.18209
Letter published in British Journal of Dermatology
NIHR funding call: HTA 17/98 Management of hidradenitis suppurativa (to be awarded 2018)
Review: Interventions for Hidradenitis Suppurativa
Study: HTA 16/13/02 Spironolactone for Adult Female Acne (SAFA) - pragmatic multicentre double-blind randomised superiority trial to investigate the clinical and cost-effectiveness of spironolactone for moderate or severe persistent acne in women
Review: HTA 15/135/01 Interventions for acne scars
Review: Spironolactone for Adult Female Acne
Study: EME 13/50/12 Assessing the efficacy and safety of methotrexate vs ciclosporin in the treatment of severe atopic eczema in children: the TREatment of severe Atopic eczema in children Taskforce (TREAT) randomised controlled trial
Study: HTA 15/130/07 Best Emollient for Eczema - Which is the best moisturiser to prescribe for treating the symptoms of childhood eczema – a lotion, cream, gel or ointment?
Review: SR 15/81/23 Emollients and moisturisers for eczema
Other funded studies following the Eczema PSP:
Study: HTA 12/24/02 Home Interventions and Light therapy for the treatment of vitiligo (HI-Light Vitiligo Trial)
Feasibility study: Psychological interventions in addition to standard medical care in vitiligo
The full listings of research priorities on a variety of topics can be seen on the James Lind Alliance website.
Contact us if you would like to take an idea forward.
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