A Priority Setting Partnership brings together patients, carers and health professionals with the aim of identifying priorities for research on specific health problems. In the UK, Priority Setting Partnerships are facilitated by the James Lind Alliance (a non-profit making initiative)We have been involved in several partnerships of this kind on different skin conditions.
We are collaborating on a new research priority setting partnership. To be announced soon.
Skin Condition
PSP Results
What happened next?
Pemphigus & Pemphigoid
Top Ten
Led by Dr Karen Harman (Leicester University Hospitals NHS Trust) and in collaboration with patient support group PEM Friends
Publication here: British Journal of Dermatology
Skin Cancer Surgery
Led by Dr Aaron Wernham and Dr David Veitch. This was joint funded by the UK DCTN and British Society of Dermatological Surgery.
Skin cancer surgery PSP final report
Hyperhidrosis
De Montfort University Leicester led this PSP on the relatively common but under researched condition of hyperhidrosis (excessive sweating).
See news article here from De Montfort University
Publication in Clinical and Experimental Dermatology journal
Psoriasis
The Psoriasis Association and University of Manchester announced the outcome of the PSP in November 2018 and are publicising the results widely in 2019
Publication here: https://onlinelibrary.wiley.com/doi/10.1111/bjd.18209
Lichen Sclerosus
Top ten
Publication here
https://onlinelibrary.wiley.com/doi/full/10.1111/bjd.17447
Cellulitis
Letter published in British Journal of Dermatology
Hidradenitis Suppurativa
NIHR funding call: HTA 17/98 Management of hidradenitis suppurativa (to be awarded 2018)
Review: Interventions for Hidradenitis Suppurativa
Acne
Study: HTA 16/13/02 Spironolactone for Adult Female Acne (SAFA) - pragmatic multicentre double-blind randomised superiority trial to investigate the clinical and cost-effectiveness of spironolactone for moderate or severe persistent acne in women
Review: HTA 15/135/01 Interventions for acne scars
Review: Spironolactone for Adult Female Acne
Eczema
Top 14
Study: EME 13/50/12 Assessing the efficacy and safety of methotrexate vs ciclosporin in the treatment of severe atopic eczema in children: the TREatment of severe Atopic eczema in children Taskforce (TREAT) randomised controlled trial
Study: HTA 15/130/07 Best Emollient for Eczema - Which is the best moisturiser to prescribe for treating the symptoms of childhood eczema – a lotion, cream, gel or ointment?
Review: SR 15/81/23 Emollients and moisturisers for eczema
Other funded studies following the Eczema PSP:
Vitiligo
Study: HTA 12/24/02 Home Interventions and Light therapy for the treatment of vitiligo (HI-Light Vitiligo Trial)
Feasibility study: Psychological interventions in addition to standard medical care in vitiligo
Contact us if you would like to take an idea forward.
Email: UKDCTN@nottingham.ac.uk
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